Collapse to view only § 11225. The National Alzheimer’s Project
§ 11225. The National Alzheimer’s Project
(a) Definition of Alzheimer’s
(b) Establishment
(c) Purpose of the ProjectThe Secretary of Health and Human Services, or the Secretary’s designee, shall—
(1) be responsible for the creation and maintenance of an integrated national plan to overcome Alzheimer’s;
(2) provide information and coordination of Alzheimer’s research and services across all Federal agencies;
(3) accelerate the development of treatments that would prevent, halt, or reverse the course of Alzheimer’s;
(4) improve the—
(A) early diagnosis of Alzheimer’s disease; and
(B) coordination of the care and treatment of citizens with Alzheimer’s;
(5) ensure the inclusion of ethnic and racial populations at higher risk for Alzheimer’s or least likely to receive care, in clinical, research, and service efforts with the purpose of decreasing health disparities in Alzheimer’s; and
(6) coordinate with international bodies to integrate and inform the fight against Alzheimer’s globally.
(d) Duties of the Secretary
(1) In generalThe Secretary of Health and Human Services, or the Secretary’s designee, shall—
(A) oversee the creation and updating of the national plan described in paragraph (2); and
(B) use discretionary authority to evaluate all Federal programs around Alzheimer’s, including budget requests and approvals.
(2) National plan
(e) Advisory Council
(1) In general
(2) Membership
(A) Federal membersThe Advisory Council shall be comprised of the following experts:
(i) A designee of the Centers for Disease Control and Prevention.
(ii) A designee of the Administration on Aging.
(iii) A designee of the Centers for Medicare & Medicaid Services.
(iv) A designee of the Indian Health Service.
(v) A designee of the Office of the Director of the National Institutes of Health.
(vi) The Surgeon General.
(vii) A designee of the National Science Foundation.
(viii) A designee of the Department of Veterans Affairs.
(ix) A designee of the Food and Drug Administration.
(x) A designee of the Agency for Healthcare Research and Quality.
(B) Non-Federal membersIn addition to the members outlined in subparagraph (A), the Advisory Council shall include 12 expert members from outside the Federal Government, which shall include—
(i) 2 Alzheimer’s patient advocates;
(ii) 2 Alzheimer’s caregivers;
(iii) 2 health care providers;
(iv) 2 representatives of State health departments;
(v) 2 researchers with Alzheimer’s-related expertise in basic, translational, clinical, or drug development science; and
(vi) 2 voluntary health association representatives, including a national Alzheimer’s disease organization that has demonstrated experience in research, care, and patient services, and a State-based advocacy organization that provides services to families and professionals, including information and referral, support groups, care consultation, education, and safety services.
(3) Meetings
(4) Advice
(5) Annual reportThe Advisory Council shall provide to the Secretary of Health and Human Services, or the Secretary’s designee and Congress—
(A) an initial evaluation of all federally funded efforts in Alzheimer’s research, clinical care, and institutional-, home-, and community-based programs and their outcomes;
(B) initial recommendations for priority actions to expand, eliminate, coordinate, or condense programs based on the program’s performance, mission, and purpose;
(C) initial recommendations to—
(i) reduce the financial impact of Alzheimer’s on—(I) Medicare and other federally funded programs; and(II) families living with Alzheimer’s disease; and
(ii) improve health outcomes; and
(D) annually thereafter, an evaluation of the implementation, including outcomes, of the recommendations, including priorities if necessary, through an updated national plan under subsection (d)(2).
(6) Termination
(f) Data sharing
(g) Annual reportThe Secretary of Health and Human Services, or the Secretary’s designee, shall submit to Congress—
(1) an annual report that includes an evaluation of all federally funded efforts in Alzheimer’s research, clinical care, and institutional-, home-, and community-based programs and their outcomes;
(2) an evaluation of all federally funded programs based on program performance, mission, and purpose related to Alzheimer’s disease;
(3) recommendations for—
(A) priority actions based on the evaluation conducted by the Secretary and the Advisory Council to—
(i) reduce the financial impact of Alzheimer’s on—(I) Medicare and other federally funded programs; and(II) families living with Alzheimer’s disease; and
(ii) improve health outcomes;
(B) implementation steps; and
(C) priority actions to improve the prevention, diagnosis, treatment, care, institutional-, home-, and community-based programs of Alzheimer’s disease for individuals with Alzheimer’s disease and their caregivers; and
(4) an annually updated national plan.
(h) Sunset
(Pub. L. 111–375, § 2, Jan. 4, 2011, 124 Stat. 4100.)